On the 20 November 2015 Phil and Julie Loosen were given life changing news. Their little boy was diagnosed with Becker muscular dystrophy. Harrison was just 4 years old.

We were heart broken, devastated.”

In many ways Harrison is like many other 4-year olds. He loves to dance and support his football team- Reading! But his parents had noticed that Harrison was having trouble walking upstairs, and was unable to run or jump properly- especially in contrast to his twin brother, Connor, and older sister, Summer.

After the diagnosis Phil and Julie searched online to find what support was out there. The couple came across Muscular Dystrophy UK, and made contact with us. After seeing the support the charity can offer they decided to fundraise for research into Becker muscular dystrophy by creating a family fund.

They have thrown themselves into fundraising since starting their family fund in April 2016. A close friend held a 5 hour dance-a-thon in April which raised close to £900. A family member, Jason Wyatt, held a 24 hour static cycle ride at the start of July 2016 and raised over £1000 through sponsorship and donations.

On 31 July 2016, Hope4Harrison held their first charity football tournament and family fun day. There were 15 teams and 15 different companies who came together with friends and family and raised   £6587 on the day! They are looking to hold this event annually.

Harrisons step grandfather, Len Raynsford and cousin Danielle Wilkin took a leap out of a plane and skydived on the 11 of September 2016 and raised a staggering £1435!

Along with collections pots at Tesco’s and co-operatives, Hope4Harrison have raised an astonishing £20,000 so far for Becker muscular dystrophy research – that’s enough to fund over 4 months of research!

Their most recent event was a team of seven skydivers in April 2017 which included Harrison’s mum, Julie! They raised just over £4000 in total!

Hope4Harrison’s next event will be their annual football tournament held on Sunday 25 June at Didcot Town FC. Do get in touch with Phil on the below contact details if you would like to put a team together.

How you can help

Muscular Dystrophy UK has been supporting families affected by Becker muscular dystrophy since 1959 funding research to find a treatment for this condition. With your help we can continue to fund research which could improve the lives of individuals living with this condition.

Setting up a family fund, like Hope4Harrison, is a great way to fundraise for Muscular Dystrophy UK to keep our vital research moving forward. Find out more about our Family Funds.

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