When you have a muscle-wasting condition – or are assisting someone who has – it’s vital to have access to the right information and advice. We’re here to help you get the support and care you need, wherever you live.
Whether you want to know more about a condition or about the practicalities of living with a muscle-wasting conditions, we’re here for you.
We offer a personal support system for people at their point of need, with a specialist helpline and free information. Last year we responded to more than 25,000 requests for help.
We can help you get the equipment, services and financial assistance you are entitled to. We can put you in touch with someone who knows what it’s like to live with muscle-wasting conditions. And our Support hub can show you support and services near you – including specialist teams and neuromuscular Centres of Excellence.
Watch our information video below on what healthcare and assistance you are entitled to:
If you would like to know more about grants available for equipment please visit our Joseph Patrick Trust page.
For information about organisations outside of the UK please see here.
A new MDUK grant will look at a self-management intervention
Five physiotherapists are among the amazing runners ta
Mitochondrial Disease Awareness Week 2018 is the 16-22 September
Duchenne treatment Exondys 51 gets second rejection