Our peer support volunteers understand what you are going through, no matter how rare the condition. Our peer support volunteers all have a personal experience of living with a muscle-wasting condition. They are passionate about providing much needed support to people when a diagnosis is given
We can introduce you to one of them so that you can contact them confidentially to talk about how you are feeling. You can speak to them on the phone and meet them face-to-face at local support group meetings.
All our peer support volunteers have been provided with training and support from members of the care and information team at Muscular Dystrophy UK and the Samaritans.
When my son was diagnosed with Duchenne Muscular Dystrophy in 2013 I felt my already small world had got so much smaller. At the time of diagnosis I knew nothing about Duchenne – I was scared and lonely. I wanted to become a peer support volunteer to hopefully offer a little understanding to those going through the same diagnosis – Vicky DeBruin
Today is Changing Places Awareness Day – the annual e
Family friendly guide produced for SMA standards of care
Find out what went on at IDMC12 in Gothenberg
Evan will be pushing Abi the 13.1 mile route in her wheelchair!