We were joined in our psychological seminar by psychologist Dr Jatin Pattni, care advisor Pippa Jackson, specialist nurse Maria Patasin, Andrew Robertson who lives with limb girdle muscular dystrophy, and MDUK’s Head of Health Service Development and Campaigns Bobby Ancil. The panel discussed how physical and mental health impact on one another, and how there is a need to tailor resources to individuals based on who they are and what they might respond to.
One resource that Muscular Dystrophy UK offers is our getting mental health support factsheet, and there are numerous support groups available:
Myositis Friends Support Network
Myotonic Dystrophy Support group
Congenital myotonic dystrophy support group
You can watch the full recording of the psychological support seminar below and on our YouTube channel.
Throughout the year, there will be seminars in our MDUK Muscles Matter 2021 online seminar series, including condition-specific sessions, practical sessions such as financial support and education or employment to help you live well, and seminars looking into ways you can manage your condition such as cardiac management or diet and nutrition. You can find out more about the seminar series, see the full list of seminars and book your place on Zoom on our Muscles Matter page.