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A better understanding the root cause behind this condition will in time lead to more targeted and…
Your story
Sulaiman R. Khan is 37 and lives in east London. At 25, he helped set up the All-Party…
Blog
Duchenne muscular dystrophy (DMD) is caused by genetic changes that prevent the body from producing…
Blog
The Chancellor of the Exchequer, Rt Hon Jeremy Hunt MP, made an Autumn statement in the House of…
Your story
I’ve always been a gamer. When I was seven my cousin had a Super Nintendo and since then, I’ve…
News
In the Chancellor’s Autumn Statement on 17 November 2022, we were pleased to hear commitments to…
Your story
Having a muscle-wasting condition means there are lots of additional costs, which other households…
Your story
Jack wanted to spend his energy living his life. He had the mentality he could do anything,…
News
The Phase 3 SAPPHIRE study aims to assess the safety and effectiveness of apitegromab used in…
Blog
Ann’s stepdaughter, Sarah, was told she lived with probable limb girdle muscular dystrophy at the…