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Chris Stennett, from Felixstowe in Suffolk, lives with FSHD. Here, he shares his daily routine and…
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Research in my laboratory focuses on the parts of the cells called mitochondria, which…
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The trials, with their energising infusions, will re-start soon but in the meantime, Luke’s mum,…
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But for people like us who are shielding, that normality seems very far away.
As a group of…
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Bored of lockdown and wanting a challenge, Alex Pilgrim came up with the idea in April and messaged…
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Funding and supporting research remains one of our priorities, and our ultimate goal remains the…
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Today – on Changing Places Awareness Day – we are delighted to announce that changes will be made…
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There are currently no treatments or cures for the condition, which affects an estimated 2,500…
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The Government in England has started to ease shielding and will pause it on 1 August, while…
Your story
“I experienced mild symptoms of FSHD from toddlerhood, including my facial weakness and difficulty…