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When we first learned that Esmae and Grace both had limb-girdle muscular dystrophy, we found the…
Your story
I have rigid spine syndrome muscular dystrophy (RSMD). My condition mostly affects my back, neck,…
Your story
Back in 2018, when I met up with MDUK to talk about the charity and its origins, I was absolutely…
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Good luck Gitte
Three years ago, keen runner Gitte was diagnosed with myositis, a rare auto-immune…
Your story
Josie is a fun loving, artistic five-year-old who loves school, swimming, playing with her little…
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Why are you fundraising for MDUK?
I’ve attended MDUK’s Celebrity Sports Quiz events at Lords…
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Many people would have been shocked and surprised by such a negative and inaccurate worldview being…
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Emma-Jayne is a dedicated caregiver to her son,…
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In her first year as Muscular Dystrophy UK’s (MDUK'…
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Dr. Vino, a Neurologist & Clinical Research…