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We are delighted to share this news with the SMA community. Without the support and hard work of…
Press release
Spinraza – the first treatment for the rare condition spinal muscular atrophy (SMA) – is clinically…
Press release
It has been 16 months since NICE started its appraisal of Spinraza, the first treatment for the…
Blog
I am 30 years old and I have the progressive condition, Ullrich congenital muscular dystrophy. As a…
Blog
The Easter holidays are a great opportunity to take a road trip – whether that’s to visit friends…
Your story
Picture yourself on a day out with friends, or enjoying dinner at a restaurant with your partner.…
Blog
Since it opened, I have been at the SSE Arena Belfast (formerly the Odyssey Arena) at least once a…
Press release
Families affected by SMA, a rare genetic condition that can leave children unable to crawl, walk,…
Press release
Shakil Malji has set up a petition to make Spinraza – the first treatment for SMA – available for…
Press release
Lauren West, Muscular Dystrophy UK’s Trailblazers Manager, said:
“Access to healthcare is a basic…