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Accessing reproductive and sexual healthcare as a disabled woman can present many challenges, such…
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Ben: I have Limb Girdle Muscular Dystrophy, and I’m 35 years old. I studied video editing at…
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Last summer, I was in the process of moving house in Stoke when I received the phone call saying…
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There are nine, maybe more, of us taking on this challenge in Simon’s memory. We’ve known each…
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From birth, we noticed that the joints of Miley’s hands and feet were extremely ‘floppy’ and at…
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The National Institute for Health and Care Excellence (NICE) has published draft guidance that…
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Tips for small gardens
Go big! It might feel like the opposite to what you might think, to…
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RyR1-related muscle conditions
The ability of a muscle to contract, allowing us to move, depends…
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The news follows on from Italfarmaco Group announcing results from the EPIDYS clinical trial…
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When Rory was diagnosed with Beckers in 2020, the consultant told us having a depletion of the…