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There are currently few clinical trials being carried out for the condition, which affects about 2,…
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On Monday 17 August, Roche announced that the European Medicines Agency (EMA) has validated the…
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The treatment, which could be the third for the condition, alongside Spinraza and Zolgensma, will…
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Professors Muntoni and Bönneman and their teams have recently jointly published a paper (that the…
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In recognition of this and in the absence of a national scheme to make the general public aware of…
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But for people like us who are shielding, that normality seems very far away.
As a group of…
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Funding and supporting research remains one of our priorities, and our ultimate goal remains the…
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Today – on Changing Places Awareness Day – we are delighted to announce that changes will be made…
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There are currently no treatments or cures for the condition, which affects an estimated 2,500…
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The Stones were recently promoted to the Vanarama National League after a successful 2019/20…