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Having a muscle-wasting condition means there are lots of additional costs, which other households…
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Jack wanted to spend his energy living his life. He had the mentality he could do anything,…
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When we first got his diagnosis, we kept thinking: “when will he need a wheelchair, what kind of…
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I have always enjoyed challenging people’s expectations of someone with a disability and I have…
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This year, we will be funding 12 exciting research projects, including three three-year project…
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Chris Maxwell, 49-years-old, will be competing in not one but two gruelling endurance events this…
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After being diagnosed with limb-girdle muscular dystrophy 2a in my mid-20s, life changed for me…
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I was diagnosed with Becker muscular dystrophy when I was around four or five years old. At this…
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I used to get the highest rate of support. But when it changed over to Personal Independence…
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I first found out I was a carrier for Becker muscular dystrophy after asking my dad “if I was to…