Muscular Dystrophy UK is today launching an exciting new partnership with the London Ambulance Service to support people affected by muscle-wasting conditions in emergency situations.
The ‘Ambulance Action’ scheme enables calls to emergency services from people with muscle-wasting conditions to be ‘flagged’, allowing paramedics to prioritise them effectively.
The new system means neuromuscular specialists can add patients to a list of people who should be automatically treated as a high priority case when 999 or 111 calls are received from their address.
Paramedics will also have access to individualised care plans, which will mean people with muscle-wasting conditions will receive the emergency care they need if they call the London Ambulance Service.
Muscular Dystrophy UK regularly hears from people affected by muscle-wasting conditions who are in need of vital emergency care. Many of whom have had difficulties expressing their individual condition-specific needs to paramedics.
We hope the new system, using the ‘Coordinate my Care’ database, will mean individuals and families affected by muscle-wasting conditions have the security of knowing paramedics will know how support their individual needs.
Although the scheme is only available in London at the moment we will endavour to roll it out across the country in due course by working with regional ambulance trusts.
Robert Meadowcroft, Chief Executive of Muscular Dystrophy UK, said:
“We know of families who will always suffer the tragic memory and consequences of their loved ones’ condition not being effectively communicated to emergency services. Ambulance Action’ can make a huge difference to families with muscle-wasting conditions and we hope that this scheme will dramatically reduce the risk of fatalities happening. We commend London Ambulance Service for addressing this and look forward to working in partnership with them and Coordinate My Care.”
Ravi Mehta 26, from London who has Duchenne muscular dystrophy said:
“I hope this scheme will make a difference to people like me with muscle-wasting conditions. My respiratory problems can be frightening, and to know that a medical team will have full access to my medical records in an emergency is a huge relief.”
David Whitmore, Senior Clinical Adviser to the Medical Director, London Ambulance Service, said:
“The London Ambulance Service is delighted to be working with Muscular Dystrophy UK, to launch this service for patients with muscle-wasting conditions. Utilising the NHS’ Coordinate My Care digital urgent care plans will mean that these patients, who have very individualised care plans, will be able receive the care they need if they call the LAS. These care plans can be accessed by the attending crew through our Clinical Hub, staffed by experienced paramedics in our Emergency Control Centre.”
The ‘Ambulance Action’ scheme is part of Muscular Dystrophy UK’s work to improve emergency care. This includes the launch of 11 condition specific alert cards to support people with muscle-wasting conditions to share the key aspects of their care needed with health professionals.
To find out more about ‘Ambulance Action’ or Muscular Dystrophy UK’s alert cards get in touch with Lloyd Tingley at firstname.lastname@example.org or on 02078034804.