Today marks the start of Becker muscular dystrophy Awareness Week (6-12 October). About 2,400 people in the UK have Becker muscular dystrophy, almost all of whom are male. Most people with the condition are diagnosed by the time they reach their 20s.
Muscular Dystrophy UK is here for anyone affected by a muscle-wasting condition such as Becker muscular dystrophy, from the moment of diagnosis and beyond. Below you can find out more about Becker muscular dystrophy and how you can help raise awareness.
What is Becker muscular dystrophy?
Becker muscular dystrophy is caused when the body does not produce enough dystrophin (a vital muscle protein) or when the dystrophin does not work properly. The severity of the condition varies between individuals. Some people with Becker muscular dystrophy may struggle with sport as children.
Their muscle weakness may become more pronounced in their teens or 20s, causing difficulty in walking quickly, running and climbing stairs. In most cases, people with Becker muscular dystrophy will be able to walk into their 40s or 50s, but for some the decline in mobility will be faster.
How we’re here to help
We understand the everyday challenges of living with a muscle-wasting condition. We’re here to help with information and advice, together with emotional and practical support, a network of local groups and an online community. Find out more about the services we offer here.
How you can get involved
- Read Jon’s story about living with Becker muscular dystrophy, and making a difference through fostering.
- Read about ‘The MD Fighter’, Rich Copson, who lives with Becker and has an audacious plan for 2019.
- Read about a new research project which looks to develop therapies that address heart problems in Becker muscular dystrophy.
- Share our infographic on social media to help raise awareness.
- Join in the conversation on Twitter by following the #BeckerAwarenessWeek hashtag.
- Find out how to obtain an alert card so you can inform healthcare professionals of key issues relating to your condition in an emergency.
- Read our Becker muscular dystrophy factsheet to find out more about the condition.
Visit our Becker muscular dystrophy page for up-to-date information and resources