Charcot-Marie-Tooth Awareness Month 2019

Published Date
Catherine Rowland
Care & Support

Today marks the start of Charcot-Marie-Tooth (CMT) awareness month 2019. There are around 23, 000 people in the UK living with Charcot-Marie-Tooth disease.  Muscular Dystrophy UK is here for anyone affected by a muscle-wasting condition such as CMT from the moment of diagnosis and beyond. Below you can find out more about CMT and how you can help us raise awareness.

What is Charcot-Marie-Tooth disease?

Charcot-Marie-Tooth Disease (CMT) is a progressive, inherited condition that causes problems in nerves controlling movement of the hands and legs. Many people with the condition also experience a loss of sensation. The condition particularly affects the muscles and bones of the feet, lower legs, hands and forearms, and while it can cause chronic pain and tiredness it is not life-threatening. There are around 23,000 people in the UK affected by CMT – more than enough to fill the O2 Arena.

How we’re here to help

We understand the everyday challenges of living with a muscle-wasting condition. We’re here to help with information and advice, together with emotional and practical support, a network of local groups and an online community. Find out more about the services we offer here.

How you can get involved

  • Read Barry’s story (pictured above) to find out more about his journey from diagnosis to getting in touch with MDUK and receiving help with home adaptations.
  • Read about Peter and how he started the community of ‘CMT warriors’.
  • Find out more about a research project that aims to identify and investigate causes of inherited neuropathy including CMT.
  • Share our infographic on social media to help raise awareness.
  • Find out about our Peer support event on 26 October where you can learn how to support others living with CMT.
  • Find out how to obtain an alert card so you can inform healthcare professionals of key issues relating to your condition in an emergency.
  • Read our CMT factsheet and share with others who have the condition.

Visit our CMT page for up-to-date information and resources about the condition.

Keep in touch