The All Party Group on Muscular Dystrophy meeting in the Northern Ireland Assembly which took place yesterday was an opportunity for people with muscular dystrophy and neuromuscular conditions and health professionals to tell MLAs and commissioners about the priorities for improving access to care and treatments in Northern Ireland.
Frank Young, Co-Director of Unscheduled and Acute Care at Belfast Health and Social Care Trust, gave an update on service developments including:
- Locum consultant support which has helped to reduced waiting times
- Neuromuscular service mapping and database work
- Educating health professionals about muscular dystrophy with the support of Muscular Dystrophy UK
- Plans to hold a Neuromuscular Forum event with workshops and presentations in the new year
The Q&A discussion at the meeting helped to identify the priorities which could be addressed at the Neuromuscular Forum event, such as:
- Research developments and clinical trial capacity
- Wheelchair services
- Multi-disciplinary care and support from community health professionals
- Psychological support
- Assistive technology
The meeting was also an opportunity to provide updates on the charity’s Fast Track and Mental Health Matters campaigns.
For more information about our action to improve access to neuromuscular care and treatments in Northern Ireland, you can get in touch by email at firstname.lastname@example.org or on 020 7803 4839.