Have your say on research into mitochondrial disease

Published Date
21/03/2019
Author
Jenny Sharpe
Category
Research

Despite growing research activity in the UK and across the globe, many questions about mitochondrial disease have not been answered. Funding is limited, so it’s essential that it’s directed to areas that are most important.

The aim of the Mitochondrial Disease Priority Setting Partnership (PSP) is to find the most important unanswered questions about mitochondrial diseases. The results will help to shape the future of mitochondrial disease research in the UK and beyond.

The first stage of the PSP is a survey to gather lots of questions from patients, caregivers and healthcare professionals. We’d like to know what you’d like answered by research. You can submit questions about anything related to mitochondrial disease, including genetics, progression, care, treatment and day-to-day life.

You can complete the survey online here.

If you’d prefer to complete the survey on paper, you can print it here and post it to PSP Project, Genetic Alliance UK, CAN Mezzanine, 49-51 East Road, London, N1 6AH, or scan and email it to membership@geneticalliance.org.uk

Further information

Download a leaflet about the PSP survey

Visit the Mitochondrial Disease PSP website

Read about MDUK-funded mitochondrial research

 

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