Limb Girdle Muscular Dystrophy Awareness Day 2019

Published Date
30/09/2019
Author
Catherine Rowland
Category
Care & Support

Today is limb girdle muscular dystrophy (LGMD) Awareness Day 2019. Muscular Dystrophy UK is here for anyone affected by a muscle-wasting condition such as LGMD from the moment of diagnosis and beyond. Below you can find out more about LGMD and how you can help us raise awareness.

What is limb girdle muscular dystrophy?

Limb girdle muscular dystrophies get their name from the groups of muscles that are affected – usually the shoulder and pelvic girdle, for example, the big muscles around the top of the arms and legs.

There are at least 25 types of limb girdle muscular dystrophy which is genetic and occurs when a person has a mutation in a gene, causing the muscles to stop working effectively.

Some types of LGMD affect the heart and breathing muscles. Symptoms of LGMD can appear any age – childhood, teens or adulthood.

How we’re here to help

We understand the everyday challenges of living with a muscle-wasting condition. We’re here to help with information and advice, together with emotional and practical support, a network of local groups and an online community. Find out more about the services we offer here.

How you can get involved

  • Read about how fundraiser and volunteer Martin Hywood (pictured above with family) who has LGMD has been embracing a life full of adventure since his diagnosis.
  • Read about a new MDUK-funded research project that aims to identify new genetic causes of LGMD.
  • Read about Mairi Leitch and members of her family who have LGMD and are continuing to take on a series of fundraising challenges for MDUK.
  • Share this infographic on social media to help us raise awareness.
  • Watch this engaging TED Talk called ‘Taking control of our genetic destiny’ by a researcher who has LGMD.
  • Join in the conversation on Twitter by following the #LGMDAwarenessDay and/or #LGMDDay2019 hashtags.
  • FInd out how to obtain an alert card so you can inform healthcare professionals of key issues relating to your condition in an emergency
  • Download our LGMD factsheet

Visit our Limb girdle muscular dystrophy page for up-to-date information and resources about the condition.

Keep in touch