National Conference and AGM: 2015

Published Date
29/09/2015
Author
Alexa Follen
Category
Care & Support

We’d like to say a huge thank you to everyone who came along to the 2015 Muscular Dystrophy UK National Conference and AGM in London on Saturday 26 September. The conference was fully-booked, and the 300 delegates took part in a full and busy day in which families, campaigners, fundraisers, researchers and scientists shared the excellent work they are doing to beat muscle-wasting conditions.

Manoj and Sejal Thakrar shared their very personal story of their four-year-old son, Shiv’s diagnosis of Duchenne muscular dystrophy and Professor Dominic Wells updated delegates on developing treatments for muscle-wasting conditions. Chief Executive, Robert Meadowcroft, presented a comprehensive report on the charity’s work over the past year as well as exciting plans for the years ahead.

Local and visiting scientists spoke about the latest in research into a range of conditions: myotonic dystrophy, congenital muscular dystrophies, spinal muscular atrophy (SMA), Duchenne and Becker muscular dystrophy and facioscapulohumeral muscular dystrophy (FSH).

A panel discussion on access to emerging treatments for muscle-wasting conditions ran alongside opportunities to hear from healthcare professionals about the importance of physiotherapy and exercise, as well as psychological support. Trailblazers got together to discuss issues affecting young disabled people, and there were opportunities to meet and talk with care advisors and our advocacy team.

The day ended with the ever-popular President’s Awards ceremony, hosted by Sue Barker MBE. The awards are given in recognition of some of the outstanding work that is done by supporters to beat muscle-wasting conditions.

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