Watch infomation videos about your care and condition

Published Date
27/04/2017
Author
Alexa Follen
Category
Strengthening healthcare services
Sulaiman Khan sunny portrait_web

Over the last 18 months, Muscular Dystrophy UK have launched a range of new information videos about your care and a range of  neuromuscular conditions.

One video outlines the specialist healthcare which families and individuals affected by muscle-wasting conditions can expect from a specialist neuromuscular centre. It was filmed at the John Walton Muscular Dystrophy Research Centre in Newcastle and features interviews with the different members of their neuromuscular team who explain their role in managing the healthcare of someone with a muscle-wasting condition.

We have also launched six additional videos on different muscle-wasting conditions. These films feature people living with each condition and show why it is so important to access specialist healthcare. The videos also describe the wide range of resources that are available from Muscular Dystrophy UK to support and advise all individuals and families living woith muscle-wasting conditions.

We have produced videos for the following more common neuromuscular conditions:

Charcot-Marie-Tooth disease (CMT)

 

Congenital muscular dystrophy

 

Duchenne muscular dystropy (DMD)

Facioscapulohumeral muscular dystrophy (FSHD)

 

Myotonic dystrophy

Spinal muscular atrophy (SMA)

 

All of these videos include interviews and comments from our supporters across the country including Sulaiman Khan (pictured) who is from London and features in our congenital muscular dystrophy video. Additionally, all of the videos contain information from some of the health professionals who we partner with on a range of projects.

Senior Neuromuscular Outreach Manager Bobby Ancil said:

These videos are very popular with people living with muscle-watsing conditions, health professionals and NHS commissioners and one of the films recently featured on BBC News. However, we want to make sure everyone gets to know about them. They are one more way that we are helping to provide infomation and support to people affected by neuromusclar conditions.

For more information about any of the conditions we represent and the support we are able to offer, get in touch with Muscular Dystrophy UK on our Freephone helpline 0800 652 6352 or at info@musculardystrophyuk.org.

Keep in touch
X
- Enter Your Location -
- or -