The East Midlands Neuromuscular Network seeks to improve access to neuromuscular care across the region.
Steering Group
The network is chaired by Dr Saam Sedehizadeh, Consultant Neurologist at the Nottingham University Hospitals NHS Trust.
The Steering Group has representatives across the following services:
- Nottingham University Hospitals NHS Trust;
- Royal Derby Hospital;
- Derbyshire Community Health Services;
- Leicester Royal Infirmary;
- Glenfield Hospital;
- United Lincolnshire Hospitals NHS Trust;
Objectives of the network
The network meets several times a year to discuss current developments in the area, including:
- Supporting the coordination of neuromuscular care across primary, secondary, and tertiary services in the East Midlands region.;
- Identify and share good practice and good standards of care.
- Ensure neuromuscular disorders and associated needs are understood by commissioners and local teams resulting in more effective care.
- Work to secure the provisions of care equipment for people with neuromuscular conditions.
Past events and activities
- Work in securing access to mechanical insufflation-exsufflation (MI-E) Cough Assist machines for neuromuscular patients in Lincolnshire.
- Survey on the impact of COVID-19 pandemic on people living muscle-wasting and weakening conditions in the East Midlands;
- Upskilling event on neuro-respiratory failures and the role of cough assist machines and non-invasive ventilation for health professionals;
- Developing an East Midlands Cough Assist Policy;