The Yorkshire, Humber, and the North East (YHNE) Neuromuscular Network seeks to improve access to neuromuscular care across the region.
Steering Group
The network is chaired by Dr Anne-Marie Childs, Dr Channa Hewamadduma, and Dr Chiara Marini-Bettolo.
The Steering Group has representatives across the following services:
- Sheffield Teaching Hospitalt;
- Sheffield Children’s Hospital (Ryegate Centre);
- Leeds Teaching Hospital;
- Leeds Children’s Hospital;
- John Walton Muscular Dystrophy Research Centre, Newcastle;
- Hull University Hospital;
- Bradford University Hospital;
Objectives of the network
The network meets several times a year to discuss current developments in the area, including:
- Support the coordination of neuromuscular care across primary, secondary, and tertiary services;
- Exchanged services updates, case studies, and other information to develop professionals in the region.;
- Working in identifying gaps in neuromuscular services in the region and knowledge sharing and exchange between services;
- Promote awareness of service provision across the region, looking at hospital services, patient flows, outreach clinics and local and independent support services;
- Ensure neuromuscular disorders and associated needs are understood by commissioners and local teams resulting in more effective care;
Past events and activities
- Upskilling event for neuromuscular AHPs and CNS on Duchenne muscular dystrophy and Spinal Muscular Atrophy;
- Developed strategic adult neuromuscular pathway, including rehabilitation pathway, respiratory and cardiac pathway, and palliative care pathway for services in the region;
- Free information days and workshops for people with muscle-wasting and weakening conditions and their families;
- Scoping services exercises to identify gaps in neuromuscular services in the region;