In August, Daniel Edwards’ family completed a very special challenge in Muscular Dystrophy UK’s Move a Mile for Muscles event. Along with their friends, they walked a three-legged mile along Llanelli seafront and raised a fantastic £715. This is enough to fund more than 20 hours of research into Duchenne muscular dystrophy.
Daniel was born in March 2009. In May of that year, his parents discovered he had the condition, Duchenne muscular dystrophy. About 100 boys are born in the UK each year with Duchenne muscular dystrophy, a life-shortening muscle-wasting condition that causes muscles to weaken and waste over time, leading to increasing disability.
Daniel’s mum Mandy said, “As you can imagine, the news was devastating. Being new parents, the news hit my husband David and our families very hard. However, we have much to be thankful for. We take one day at a time, keep a positive outlook and we will do our very best to support Daniel in whatever lies ahead.
“Thankfully we have the best family, friends and support network that we could ask for and there are many families out there in a similar situation to us. We hope as a community to tackle this head on and make positive progress into finding a treatment.”
Laura Crouch, Volunteer Fundraising Manager for South Wales said, “Mandy and her family and friends organised a brilliant event. Their positivity and enthusiasm really make a difference to the lives of people living with muscle-wasting conditions.”