Fleur Perry on being a Trailblazer

Being a Trailblazer offers not only an opportunity to share your experiences with others, but to challenge yourself to do something new.

Fleur Perry (25) from Swindon in Wiltshire has Spinal Muscular Atrophy and is an Advocacy Ambassador for Muscular Dystrophy UK.

Fleur is one of our Trailblazers, a network of more than 600 young disabled people who campaign for change and provide guidance on issues that affect them.

As a charity, we make it a priority to provide services and opportunities to help disabled people live as independently as possible.

Below she tells us a little bit about what Trailblazers do and why she has enjoyed being a part of the group.

I joined Trailblazers in the summer of 2013. I had been looking for information about moving to a wheelchair accessible house and just could not find any information anywhere. When I joined Trailblazers, it was really helpful to hear the advice of people who had already been through that process.

This campaigning group is full of talented young people who share a common goal: using their combined experience to remove barriers to independence and equal opportunities, supporting one another all the way.

Campaigning takes place on an individual level, with one or more Trailblazers working on an issue in their local area, and on a national level, through surveys, undercover investigations, contributing to reports, and speaking at the All Party Parliamentary Group for Young Disabled People. Past campaigns have included access to university education, employment, housing, and high streets to name just a few.

Being a Trailblazer offers not only an opportunity to share your experiences with others, but to challenge yourself to do something new. For me, I’ve found the opportunity to blog about these campaigns has allowed me to develop my writing skills. I’ve also met some great people in the last 2 years; I look forward to continuing to campaign with them.

If you’d like to find out about getting involved in the Trailblazers network, please contact us on 020 7803 4807 or trailblazers@musculardystrophyuk.org

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