Someone to talk to
It was nice to be able to speak to someone who understood what it was like to live with a muscle-wasting condition. Just chatting and listening, I learned I wasn’t on my own and there was support out there.’’
Adrian, who has a muscle-wasting condition
Want to talk to someone who can relate to what you’re feeling? We can put you in touch with someone who, through their own first-hand experience of living with a muscle-wasting condition, can give you support and advice.
Whether you have a muscle-wasting condition, or someone close to you has, we can put you in touch with someone you can talk to.
Add your voice to our biggest consultation yet
SMA gene treatment Zolgensma accepted for restricted use
Find out about the research updates shared at the meeting
Tickets are £125 per household and include three bottles of wine
11 April 2021
18 April 2021
29 April 2021