Someone to talk to

It was nice to be able to speak to someone who understood what it was like to live with a muscle-wasting condition. Just chatting and listening, I learned I wasn’t on my own and there was support out there.’’

Adrian, who has a muscle-wasting condition

Want to talk to someone who can relate to what you’re feeling? We can put you in touch with someone who, through their own first-hand experience of living with a muscle-wasting condition, can give you support and advice.

Whether you have a muscle-wasting condition, or someone close to you has, we can put you in touch with someone you can talk to.

Parents' network

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Support groups

Support in Wales, Scotland and Northern Ireland

I need practical advice on what support I am entitled to

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News

Tesco installs 100th Changing Places toilet

The toilet opened today, 3rd December, in its Watford Extra store
Tesco installs 100th Changing Places toilet

The toilet opened today, 3rd December, in its Watford Extra store
SMA research project update

Investigating the potential of an existing drug to treat SMA
Gamer takes part in 14-hour arcade challenge

Gamer takes part in 14-hour arcade challenge for MDUK