Someone to talk to
It was nice to be able to speak to someone who understood what it was like to live with a muscle-wasting condition. Just chatting and listening, I learned I wasn’t on my own and there was support out there.’’
Adrian, who has a muscle-wasting condition
Want to talk to someone who can relate to what you’re feeling? We can put you in touch with someone who, through their own first-hand experience of living with a muscle-wasting condition, can give you support and advice.
Whether you have a muscle-wasting condition, or someone close to you has, we can put you in touch with someone you can talk to.
News
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NICE statement on access to Spinraza
NICE update on access to Spinraza during COVID-19 crisis
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Guidance on risks from coronavirus
Guidance on risks from coronavirus
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British Science Week 2020
Our research in ultra-rare conditions
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MDUK to benefit from major On Farm event
MDUK to benefit from major On Farm event
Events calendar
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7
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11
CANCELLED: Easter 50 Challenge 2020
11 April 2020
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16
CANCELLED: North West Muscle Group meeting
16 April 2020
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