Someone to talk to
It was nice to be able to speak to someone who understood what it was like to live with a muscle-wasting condition. Just chatting and listening, I learned I wasn’t on my own and there was support out there.’’
Adrian, who has a muscle-wasting condition
Want to talk to someone who can relate to what you’re feeling? We can put you in touch with someone who, through their own first-hand experience of living with a muscle-wasting condition, can give you support and advice.
Whether you have a muscle-wasting condition, or someone close to you has, we can put you in touch with someone you can talk to.
Approval for Spinraza in Scotland
We have heard today that, subject to sign-off, Spinraza
A new study at GOSH is looking for volunteers
Five year old Leicestershire boy Rhys is getting excite