Search icon Open mobile navigation

News, blogs and stories

Read the latest news, browse other people's stories and find blogs about experiences you relate to. You can also read our publications like Target MD, and find our most recent press releases.

Advanced filters

Blog
Group of runners at the Oxford Town and Gown all running towards the camera
Meet the #TeamOrange runners going the distance at Bidwells Oxford Town & Gown 10k to help fight muscle-wasting conditions
We are excited to welcome the thousands of runners joining us at the historic Bidwells Oxford Town…
Read more
Your story
The photo is taken inside a red car. Dean sits on the passenger side with his daughter Grace, an 18 year old blonde girl in the drivers seat. A Younger blonde girl, Millie, sits behind the driver.
“They encouraged us not to downplay the worst days”: Dad Dean reflects on helpline’s invaluable support
When we first learned that Esmae and Grace both had limb-girdle muscular dystrophy, we found the…
Read more
Your story
2 image collage of Sara - on the left, she's wearing a green dress and in front of lots of trees. On the right, it's a selfie of Sara wearing a multi-colour floral shirt
“Sometimes, having the heating on is the only way I can stop my muscles hurting – so what happens when people like me can’t afford the energy bill?”
I have rigid spine syndrome muscular dystrophy (RSMD). My condition mostly affects my back, neck,…
Read more
Your story
Jed Thirkettle is on holiday standing with his thumbs up
“We spend so much of our lives wishing we were in someone else’s shoes that we often forget to enjoy what we have right now”
Like most kids growing up in the UK, every year my classmates and I took part in the school sports…
Read more
Blog
Image of an auditorium with a projection of a presentation that reads 'Welcome to the 16th UK Annual Neuromuscular Translational Research Conference 29th and 30th March 2023'
Recap from the 16th UK Neuromuscular Translational Research conference 2023
The conference took place in London on the 29 and 30 March 2023 and was officially opened by…
Read more
Blog
Research lab image of labelled bottles
New findings may increase the speed of research into treatments for Duchenne muscular dystrophy
Future research into treatments for Duchenne Muscular Dystrophy (DMD) could be made faster and…
Read more
Your story
Close up image of Kiana which is cropped on the left to mimic a spotlight. On the left is an orange overlay with the words 'Spotlight: Kiana's Story' written
“Writing music helps me process my emotions, singing lets me share my story with the world"
I’ve always loved sharing stories that move people. That’s why I’m so excited to be releasing my…
Read more
Your story
Gabby Logan at the Celebrity Sports Quiz
Gabby Logan on turning 50 and her favourite memories in her five years as MDUK’s president
Back in 2018, when I met up with MDUK to talk about the charity and its origins, I was absolutely…
Read more
Blog
Collage of the Team Orange runners in the blog (fltr) Sid, John, Caroline, Charlie, Debbie, Susanne, Gitte and Karl
Good luck to all our MDUK marathon runners going the extra mile for people living with muscle-wasting conditions
Good luck Gitte Three years ago, keen runner Gitte was diagnosed with myositis, a rare auto-immune…
Read more
News
News-Update
UK sites are now recruiting people with FSHD to take part in a clinical trial
We reported last year that Fulcrum Therapeutics announced that it will be starting a phase 3…
Read more