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The group - which Muscular Dystrophy UK is a member of - made the announcement this week.
It…
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Many – though not all – people with a muscle-wasting condition will be shielding at the moment. You…
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What is FSHD?
Facioscapulohumeral muscular dystrophy (FSHD) causes muscles to weaken and waste…
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As well as campaigning for access to healthcare and treatment and providing direct support to…
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People with SMA Type 1 and 2 may be able to take the oral drug if Spinraza, the first treatment for…
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The first document, which answers questions about Spinraza and how it works, can be found here.…
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Patients who are eligible under the terms set out in the Managed Access Agreement will be able to…
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The latest guidance was issued on 31 May, and applies to people in England and Wales.
We know many…
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The campaign, Walk with Carmela, is fronted by six-year-old Carmela Chillery-Watson, who has LMNA-…
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On the day which would have been a grand affair in the Long Room at Lord’s, we’re holding our…