We campaign to improve the quality of life for people living with a muscle wasting or weakening condition. We believe that our community should have access to the specialist healthcare, support, and emerging treatments they need, as soon as possible. By bringing together people living with a muscle wasting condition, healthcare professionals, and decision makers within the NHS and other organisations, we can improve treatment and outcomes and remove the barriers that stand in the way of people being able to live independently.
Our campaigning work
The General Election 2024
Following the UK General Election, people with muscle wasting and weakening conditions need a strong voice in parliament. Help us engage new MPs and push for change.
Current campaigns
We work alongside individuals and families affected by muscle wasting conditions, health professionals, politicians, and NHS commissioners to improve healthcare in the UK.
A key part of our work is our access to treatments campaign. We’re committed to identifying and removing the barriers that cause delays to ensure that patients are able to access and benefit from new, safe and effective treatments as quickly as possible.
Campaigning Achievements
For over 60 years we’ve campaigned for people’s rights, better understanding, accessibility, and access to treatments for people with muscle wasting conditions.
Our parliamentary work
We greatly value cross-party support from parliamentarians across the UK. This is vital for improving neuromuscular services, faster access to treatments, and enabling people with muscle wasting and weakening conditions to live independently. Here you will find the latest information about the work of the parliamentary groups in Westminster, Wales, Scotland, and Northern Ireland.
