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From birth, we noticed that the joints of Miley’s hands and feet were extremely ‘floppy’ and at…
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The National Institute for Health and Care Excellence (NICE) has published draft guidance that…
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Tips for small gardens
Go big! It might feel like the opposite to what you might think, to…
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RyR1-related muscle conditions
The ability of a muscle to contract, allowing us to move, depends…
Your story
My nephew Oli was diagnosed with muscular dystrophy before his first birthday and has always been…
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The news follows on from Italfarmaco Group announcing results from the EPIDYS clinical trial…
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When Rory was diagnosed with Beckers in 2020, the consultant told us having a depletion of the…
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Over 110,000 people in the UK are living with a muscle wasting or weakening condition and raising…
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Medical and scientific conferences are an essential part of the work clinicians and researchers do…
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Duchenne muscular dystrophy (DMD) is a condition caused by genetic changes in the dystrophin gene…