We’re delighted to invite you to our Northern Ireland Paediatric Information Day, a free, in-person event for parents and carers of children living with a muscle wasting condition.
Northern Ireland Paediatric Information Day
Join our free, in-person event for parents and carers of children living with a muscle wasting condition.
Whether your child has recently been diagnosed, you’re looking for practical advice, or you’d simply like to meet and connect with other families who understand your experiences, this day is for you.
Who is this information day for?
This event is open to families across Northern Ireland and the wider UK. It is designed for parents and carers of children living with a muscle wasting condition.
What to expect
- Informative sessions covering practical advice and latest developments in research
- A chance to meet and connect with other families who understand your experiences
- Learn more about services and resources available to families
- Share experiences, ask questions and feel part of a supportive community
- Lunch is provided as well as refreshments throughout the day
Sign up now to secure your place
Spaces are limited and, if the event reaches capacity, we’ll operate a waiting list to ensure as many families as possible have the opportunity to attend.
We’re currently finalising the programme and we’ll share the full agenda and speaker line-up closer to the event. The event will run from 10am to 3pm.
10.00am – 10.30am
Registration and refreshments
10.30am – 10.45am
Welcome and charity update
Neeru Naik, Director of Services and Support, Muscular Dystrophy UK
10.45am – 11.15am
Beyond the diagnosis: living well and thriving with a neuromuscular condition
Dr Kim Stevenson, Consultant Paediatric Neurologist, Royal Belfast Hospital for Sick Children
11.15am – 11.45am
An introduction to Disability Sport NI
Terry Conroy, Disability Sports NI
11.45am – 12.00pm
How fundraising supports our charity work in Northern Ireland
Catherine O’Hara, Community Fundraising Manager (Northern Ireland), Muscular Dystrophy UK
12.00pm – 1.00pm
Lunch
1.00pm – 2.00pm
Staying connected through change and challenge
Elaine McCriskin, Strive NI
2.00pm – 2.30pm
Our services and support provision for families
Graham Hawthorne, Advocacy and Support Officer (NI), Muscular Dystrophy UK
2.30pm – 2.55pm
Connecting families: peer support, networking and refreshments
Graham Hawthorne, Advocacy and Support Officer (NI), Muscular Dystrophy UK
2.55pm – 3.00pm
Closing remarks
Neeru Naik, Director of Services and Support, Muscular Dystrophy UK