Muscular Dystrophy UK is the charity for the 70,000 people living with muscle-wasting conditions in the UK. We bring together people affected by more than 60 rare and very rare progressive muscle-weakening and wasting conditions.
Muscle-wasting conditions are very rare, affecting just over one in every 1,000 people. As a result, some health professionals may never come across anyone with a muscle-wasting condition and may not know much about them. But we do.
Since 1959, we’ve been supporting families living with muscle-wasting conditions. We provide vital information, advice, resources and support for people with these conditions, their families and the professionals who work with them.
Which condition would you like to know more about?
If you’re at all unsure about where your muscle-wasting condition is listed, please get in touch: call us on 0800 652 6352.
Our factsheets can tell you more
We have lots of helpful information about living with muscle-wasting conditions.
Useful information
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Call us any time - we’re here to help you
0800 652 6352
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News
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New online courses for health professionals
e-learning modules will drive up standards of care across the UK
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Focus on Spinraza in Parliament
Spinraza access activity in Westminster
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Evaluating a new self-management intervention
A new MDUK grant will look at a self-management intervention
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The families funding a new LMNA-CMD project
Three Family Funds are backing a project to know the condition
Events calendar
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18
North East Muscle Group
18 September 2018
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20
Myotonic Dystrophy support group in Oxfordshire
20 September 2018
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22
Slough family support and information day
22 September 2018
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