Muscular Dystrophy UK is the charity for the 70,000 people living with muscle-wasting conditions in the UK. We bring together people affected by more than 60 rare and very rare progressive muscle-weakening and wasting conditions.
Muscle-wasting conditions are very rare, affecting just over one in every 1,000 people. As a result, some health professionals may never come across anyone with a muscle-wasting condition and may not know much about them. But we do.
Since 1959, we’ve been supporting families living with muscle-wasting conditions. We provide vital information, advice, resources and support for people with these conditions, their families and the professionals who work with them.
Which condition would you like to know more about?
If you’re at all unsure about where your muscle-wasting condition is listed, please get in touch: call us on 0800 652 6352.
Our factsheets can tell you more
We have lots of helpful information about living with muscle-wasting conditions.
Useful information
-
-
-
-
Call us any time - we’re here to help you
0800 652 6352
-
-
News
-
-
Trailblazers launch new campaign into disabled women’s access to healthcare
Letter submitted to Health Minister
-
Update on Catabasis’ Duchenne trial
Four UK sites are expected to open in the next few months
-
Sarepta seeks FDA approval of exon 53 drug
Golodirsen could potentially treat 8% of the Duchenne population
Events calendar
-
25
Colchester Hythe Tesco Collection
25 January 2019
-
1
Go Orange for a Day 2019!
1 February 2019
-
1
Go-Orange Gala Dinner
1 February 2019
Near you
