Muscular Dystrophy UK is the charity for the 70,000 people living with muscle-wasting conditions in the UK. We bring together people affected by more than 60 rare and very rare progressive muscle-weakening and wasting conditions.
Muscle-wasting conditions are very rare, affecting just over one in every 1,000 people. As a result, some health professionals may never come across anyone with a muscle-wasting condition and may not know much about them. But we do.
Since 1959, we’ve been supporting families living with muscle-wasting conditions. We provide vital information, advice, resources and support for people with these conditions, their families and the professionals who work with them.
Which condition would you like to know more about?
If you’re at all unsure about where your muscle-wasting condition is listed, please get in touch: call us on 0800 652 6352.
Approval for Spinraza in Scotland
We have heard today that, subject to sign-off, Spinraza
A new study at GOSH is looking for volunteers
Testing a self-injectable drug called zilucoplan