Muscular Dystrophy UK is the charity for the 70,000 people living with muscle-wasting conditions in the UK. We bring together people affected by more than 60 rare and very rare progressive muscle-weakening and wasting conditions.
Muscle-wasting conditions are very rare, affecting just over one in every 1,000 people. As a result, some health professionals may never come across anyone with a muscle-wasting condition and may not know much about them. But we do.
Since 1959, we’ve been supporting families living with muscle-wasting conditions. We provide vital information, advice, resources and support for people with these conditions, their families and the professionals who work with them.
Which condition would you like to know more about?
If you’re at all unsure about where your muscle-wasting condition is listed, please get in touch: call us on 0800 652 6352.
Our factsheets can tell you more
We have lots of helpful information about living with muscle-wasting conditions.
Useful information
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Call us any time - we’re here to help you
0800 652 6352
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News
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Disability Rights debated at Prime Ministers Questions
Jeremy Corbyn, Labour Leader put the disability rights
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Continuing fight for access to SMA treatment
We have sent a joint charity letter on access to Spinraza
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Year one update for UNITE-DMD
Read the year one update for the UNITE-DMD gene therapy trial
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CMT observational study starts in the UK
Individuals can take part using a phone app
Events calendar
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18
Borough Station Christmas Collection
18 December 2018
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12
Southwark Tesco Collection
12 January 2019
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19
Chelmsford Tesco Collection
19 January 2019
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