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Celebrating strength: Disability Pride Month in the muscle wasting community

Disability Pride Month takes place every July and is a time for the community to raise our voices and be proud of who we are — not despite our disabilities, but because of the strength, perspective, and resilience they’ve given us. It’s also a chance to challenge stigma, celebrate identity and remind the world that disabled lives are valuable, diverse and worthy of recognition.

The physical challenges we face are constant, but with that comes determination, adaptability, and a sense of community. This month, we asked for your thoughts on Disability Pride Month, what you wish able-bodied people knew about us, and what makes you proud to be part of the disabled community. This is our moment to reflect on how far we’ve come as individuals and as a collective, and to say unapologetically; we are proud of who we are. 

Celebrating diversity is the way forward for inclusion 

Disability Pride Month is more than a celebration; it’s a movement rooted in visibility, resilience and self-worth. For those of us in the muscle wasting community, it’s a vital time to highlight not just our identities, but also the daily realities we face.

“Whether it’s battling fatigue, navigating inaccessible environments or dealing with misconceptions, this month is a powerful opportunity to raise awareness of the unique challenges and discrimination disabled people encounter.”

“It’s a good idea to show the everyday challenges faced by disabled people.” 

This is not about seeking pity. It’s about educating, empowering, and shifting societal perceptions. We live in a world that often overlooks or underrepresents disabled voices. This month allows us to reclaim space and to express that disability is not something to be ashamed of, but a part of human diversity to be embraced. 

“I think it’s so important to recognise disability pride and celebrate the highs and lows that disabled people face every day!” 

Disability pride is about owning our experiences, celebrating our achievements, no matter how big or small, and affirming our right to exist fully and visibly in every part of life. 

Able-bodied people need to know what we go through 

A large part of Disability Pride Month is about bridging the gap between the disabled community and able-bodied people. Only by making ourselves more visible and sharing our stories will society begin to change its attitudes. This month is not just for the disabled — it’s an invitation for everyone to listen, learn and grow. 

“Take a look at what we have to overcome and how much extra effort we take to achieve the same as able-bodied people. We are just like you, but with more challenges.” 

This is a call for understanding. It’s about recognising the barriers disabled people face, and the strength it takes to push through them daily.  

“Please always accept people the way they are and help end any stigma!” 

“Acceptance is powerful. When people see us as equals, not as ‘inspirations’ or ‘exceptions’, but as people with careers, relationships, dreams… it changes the narrative.”

“I simply ask them to let us celebrate and join in with us!” 

The disabled community is one of great strength 

In the muscle wasting community, pride comes from solidarity, empathy and shared strength. We know what it means to support one another through medical appointments, emotional lows, accessibility struggles, and moments of joy.  

“I am proud to be a part of the neuromuscular community — we are there for each other whenever someone needs it, and I know that if I am struggling, I can reach out and someone will be there for me.” 

Pride in our community doesn’t come from one moment or achievement; it comes from the everyday grit, the quiet victories and the collective support we offer one another. 

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