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Share your story

Share your story

Thank you for your interest in sharing your story. Telling your story is a powerful and positive way of showing what it’s like to live with a muscle wasting or weakening condition, or to be a loved one of somebody who has a condition. Your story has the power to inspire and give hope to others and remind them that they are not alone. Sharing your experience can also explain why support is needed and the difference it can make. Please fill in the form below and we will contact you about your story.

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Stay connected with our community
We’d love to share updates with you about our work, opportunities to take part in events and other ways to help beat muscle-wasting conditions. We will never share your details with anyone. We will only contact you in the ways that you wish, making use of the information you’ve told us (including your muscle-wasting condition) and publicly available information. We want to make sure what we communicate with you is relevant to your interests. Our privacy policy is available on our website or by phoning 0300 012 0172.
We would like to keep in touch with you about our vital work and update you on our news and fundraising activities. Please tell us if you would be happy for us to contact you:*

We’re here to support you

We have a range of support services for you.
Call our helpline

Advice for living with or caring for someone with a muscle wasting condition.