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Share your story

Thank you for your interest in sharing your story.

Telling your story is a powerful and positive way of showing what it’s like to live with a muscle wasting or weakening condition, or to be a loved one of somebody who has a condition. Your story has the power to inspire and give hope to others and remind them that they are not alone. Sharing your experience can also explain why support is needed and the difference it can make.

Please fill in the form below and we will contact you about your story.

Share your story

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“I do believe we can change things. I think the more we push and share our stories on social media and just refuse to stay quiet, the faster we’ll get to where we need to be.”

Jason Croucher in a firefighter uniform
Jason Croucher
Lives with limb girdle muscular dystrophy

We’re here to support you

We have a range of support services for you.
Call our helpline
Information

Advice for living with or caring for someone with a muscle wasting condition.