Physiotherapy. The primary aim of managing a muscle-wasting condition is to increase or at least maintain function and mobility. Physiotherapy can assist in doing this, and it can also maintain breathing capacity, delay the onset of curvature of the spine (scoliosis) and help prevent the development of contractures. It is important that the physiotherapist involved is familiar with the treatment of people with muscle-wasting conditions.
Exercise. There is some debate over whether people with muscle-wasting conditions should undertake strenuous physical exercise. Some say that putting additional strain on already weakened muscles will cause additional harm, while others believe that the exercise may increase muscle strength. Insufficient evidence exists to support either, but it is believed that moderate non-weight-bearing exercise such as swimming, walking or pedalling may be the best solution. This sort of aerobic exercise helps to maintain a healthy cardiovascular system and a steady weight. It is however important that this is discussed fully with a clinician.
Corrective surgery. Scoliosis, or curvature of the spine, is common in central core disease. Spinal surgery aims to correct the posture by re-aligning the spinal column, and involves the insertion of rods, screws or wires. There are benefits and risks associated with this surgery, and more information is available if you call our Muscular Dystrophy UK helpline. As with other treatments, it is very important that options are discussed fully with a consultant or specialist before a decision is made. Young children might use a spinal brace and children who do not walk might use moulded seating.