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Our community research hub

Welcome to the hub. This is where we share opportunities for you to engage with research projects, surveys, and studies – all to support people with muscle wasting and weakening conditions to live well now.  

 Every project is led by carefully selected and trusted partners, including academic institutions, students, and other charitable organisations. Like us, they are passionate about building a community to change the future of muscle wasting conditions.   

Current projects

The project list is updated regularly, so if nothing appeals to you at the moment, check back to discover new opportunities.  

Project Disclaimer: Muscular Dystrophy UK shares research opportunities with our community to advance our understanding of muscle wasting and weakening conditions. However, we are not directly affiliated with the conduct, outcomes, or data management of these third-party projects. We encourage our community to carefully review each project’s privacy policy and consent forms before participating. 

D-Brain

Research Institution: University College London

Type: In person study

Description: UCL researchers are investigating the correlation between individual dystrophin gene mutations and behavioral and emotional difficulties in children with dystrophinopathies.

Inclusion criteria: Male, 7-17 years old, genetically proven diagnosis of Duchenne muscular dystrophy or Becker muscular dystrophy with a specific mutation (see study details) OR males 7-17 years old without dystrophinopathies, or any other neurological or psychiatric condition.

Frequently Asked Questions

More than 110,000 people live with muscle wasting or weakening conditions in the UK. But at times, all of us can feel lonely, stressed and exhausted. Taking part in research projects helps you know that you’re not alone.

Your participation enables essential research, contributes to our collective understanding, and can lead to real-world impact. It is a chance to share your experiences and help change the future.  

Are you a researcher looking for participants?

If you’re conducting research into muscular dystrophy and would like to advertise your project on this page, we’d love to hear from you. Please email digital@musculardystrophyuk.org with details about your project, and our team will get back to you as soon as we can.

Research disclaimer  

We reserve the right to refuse promotion of any third-party research project, survey or study.