This Christmas, you have the power to bring hope and joy to families living with the daily challenges of muscular dystrophy. By giving a gift today, you can provide essential support to those facing this difficult journey.
Meet Oscar and Seb’s Mum
“When I look back at Christmas photos from when Oscar and Seb were little, it’s lovely to see their happy faces – opening their stockings, pulling crackers or getting ready to dive into a mountain of presents.
“But our photos these days are different. My beautiful boys can’t smile any more. They can’t raise their eyebrows, blow a kiss or even frown. And not being able to show emotion like this is one of the most heartbreaking things about their condition.
“You see, Oscar and Seb have facioscapulohumeral muscular dystrophy (FSHD) – an incurable muscle wasting condition that’s particularly severe if it starts early in life. The boys are losing muscle so quickly, it’s very hard for them to balance and walk.
“Of course, I still worry about my boys all the time, especially as they grow up and try to live more independent lives, like all their friends. But I know MDUK will be there for us at every stage of the journey – thanks to the kind support of people like you.”
– Kerry Spink, Oscar and Seb’s mother
How you can help
Today, Oscar and Seb are busy teenagers – going to school, spending time with friends and playing powerchair football for a local club. Life isn’t easy, but they still have fun together.
By donating, you can make sure families like Oscar and Seb’s have access to support from us at every stage of their journey.
Your donation could help us answer more calls on our helpline, or help families access financial assistance and afford vital specialist equipment.