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Lay Research Panel Member

Our Lay Research Panel works closely with our Research Team to evaluate applications for our research grants. It is made up entirely of people affected by muscle wasting or weakening conditions.

Location Zoom

How you can shape muscle wasting research to meet all our needs

Joining our Lay Research Panel is a great way to use your lived experience to improve the lives of more people like you. The panel plays a critical role in ensuring that we fund research to meet the needs of our community.  

We meet twice a year over Zoom.  In these meetings we review our grants programme and discuss the research applications we have received. We review every application carefully to assess whether and how it will benefit people with muscle wasting conditions. A scientific advisor is available during these meetings to answer any scientific questions we might have.  

Two members of the Lay Research Panel then provide feedback to our Medical Research Committee, made up of scientific and clinical experts, in a committee meeting. Panel members also have voting rights, so they have a direct influence on deciding which grants are funded. 

Becoming a panel member – what’s involved

You don’t need a scientific background to be a member of the Lay Research Panel. We welcome applications from anyone affected by a muscle wasting or weakening condition – personally or through a family relationship. If this is you, you have an interest in medical research, and you are willing to spend time reading and assessing applications for research funding, we’d love to hear from you.  

As a member of the Lay Research Panel, you will: 

  • Read and assess plain language applications for funding (prepared by researchers)  
  • Attend meetings once or twice a year to discuss your views on applications (you will be required to read applications before the meetings)
  • Work with the Muscular Dystrophy Research Team to help shape the best way to communicate research to a lay audience

I’m in. How do I apply?

Applying to be a member of the panel is straightforward. Simply fill out the form, and we will contact you about how to make a formal application. We usually consider applications in the Autumn, but you can apply any time, and we will keep your details on file until the next opportunity comes up. Please note: we can only accept applications from people based in the United Kingdom.  

Download full role description

Interested? You can read the full role description here.

Volunteer (Lay Research Panel)

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Stay connected with our community
We will never share your details with anyone. We will only contact you in the ways that you wish, making use of the information you’ve told us (including your muscle-wasting condition) and publicly available information. We want to make sure what we communicate with you is relevant to your interests. Our privacy policy is available on our website or by phoning 0300 012 0172.

Why volunteer?

Connect with others

Our volunteers have the opportunity to meet and engage with the muscle wasting community. Meet people who share similar experiences.

Make a difference

Our volunteers are making a tangible difference. Together we are changing the future of people with muscle wasting and weakening conditions.

Learn new skills

Our volunteers learn and develop their skills. Communication, empathy and problem solving.

Personal fulfillment

Our volunteers often experience a sense of accomplishment and pride knowing they are contributing to groundbreaking research and life-changing support.