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NEWS and UPDATES

Nominations open for our Stronger Together Awards 2027
October 1, 2026
We’re delighted to open nominations for our Stronger Together Awards, which will recognise and honour outstanding people in our community. You have until Sunday 1 November 2026 to nominate.
Read Nominations open for our Stronger Together Awards 2027
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Nominations open for our Stronger Together Awards 2027
October 1, 2026
Read Nominations open for our Stronger Together Awards 2027
SMA screening starts in England, but babies in Wales and Northern Ireland left behind
October 1, 2026
Read SMA screening starts in England, but babies in Wales and Northern Ireland left behind
SMA newborn screening update: Our evidence to the Northern Ireland Assembly Health Committee
September 11, 2026
Read SMA newborn screening update: Our evidence to the Northern Ireland Assembly Health Committee
Scotland expands spinal muscular atrophy treatment access to babies diagnosed before symptoms start
September 7, 2026
Read Scotland expands spinal muscular atrophy treatment access to babies diagnosed before symptoms start
New TK2d treatment available through UK early access scheme
September 2, 2026
Read New TK2d treatment available through UK early access scheme
Major £1.5m funding boost into muscle wasting conditions
September 2, 2026
Read Major £1.5m funding boost into muscle wasting conditions
Funding new research to understand the scale of neuromuscular conditions
August 18, 2026
Read Funding new research to understand the scale of neuromuscular conditions
Orange background with white text that reads 'Treatment update'
Myasthenia gravis treatment approved for NHS use in Scotland
August 10, 2026
Read Myasthenia gravis treatment approved for NHS use in Scotland
Orange background with white text that reads 'Treatment update'
OAV101-IT, a potential new gene therapy for SMA, not yet recommended for NHS use in England
July 29, 2026
Read OAV101-IT, a potential new gene therapy for SMA, not yet recommended for NHS use in England
Newborn baby being held by a healthcare professional shortly after birth.
Every newborn baby in England to be screened for SMA
July 16, 2026
Read Every newborn baby in England to be screened for SMA
Graphic with the text: "PIP 'not fit for purpose', Timms Review says".
PIP ‘not fit for purpose’, Timms Review says
July 9, 2026
Read PIP ‘not fit for purpose’, Timms Review says
Collaborating with breast cancer awareness charity CoppaFeel!
June 25, 2026
Read Collaborating with breast cancer awareness charity CoppaFeel!

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