Poor bone health is common in individuals with Duchenne muscular dystrophy. However, there is currently a limited understanding of how and why bones are affected. Research into this area is important, as it could help to minimise the risk of fractures and improve the care of people with Duchenne.
We’re currently co-funding research into bone health in Duchenne muscular dystrophy. Two of our researchers, Dr Jarod Wong and Dr Shuko Joseph, are interested in conducting clinical trials to potentially improve bone health and would like to know your opinion.
By completing a short survey, you can shape their research and help to design a future clinical trial. The results of the survey will be discussed at a European Neuromuscular Centre (ENMC) workshop in June.
If you are a parent, guardian or primary carer of someone with Duchenne, please complete this survey. If you have Duchenne and are aged 14 years and older, please complete this survey.
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