We were joined in our education seminar by neuromuscular care advisor Sue Manning, SENCO Michael Barnes, and parents of children with a muscle-wasting condition Jodie Murphy and Karen Hoe.
The panel discussed ways that primary and secondary schools can support children with muscle-wasting conditions, how to best manage the transitions, the importance of Educational Health and Care Plans (EHCPs), assistive technology and more.
You can watch the full recording of the education seminar above or on our YouTube channel.
There will be seminars throughout the year in our MDUK Muscles Matter 2021 online seminar series, including condition-specific sessions, practical sessions such as financial support and psychological care to help you live well, and seminars looking into ways you can manage your condition such as cardiac management or diet and nutrition.
You can see the full list and book onto these Zoom seminars here.