To mark Mitochondrial Awareness Week 2021 (19-25 September), we were joined in our mitochondrial disease seminar by researcher Grainne Gorman, physiotherapist Sarah Holmes and Clinical Nurse Specialist Natalie James to talk about the latest developments in mitochondrial research as well as information and advice on managing the condition.
During the research session, Professor Grainne Gorman covered the neurological and non-neurological symptoms that people with mitochondrial disease might experience and the importance of setting care standards to ensure consistent practices. Grainne highlighted the advances in technology particularly in relation to new diagnostic techniques and applying these as well as clinical trial design and delivery.
This was followed by the session on living well with mitochondrial disease and Q&A with Sarah Holmes and Natalie James. The panel discussed issues around diagnosis, diet and nutrition, ways to manage "mito crashes" and general fatigue, amongst other key issues.
You can watch the full recording of the mitochondrial seminar above or on our YouTube channel.
There will be seminars throughout the year in our MDUK Muscles Matter 2021 online seminar series, including condition-specific sessions, practical sessions such as financial support and psychological care to help you live well, and seminars looking into ways you can manage your condition such as cardiac management or diet and nutrition.
You can see the full list and book onto these Zoom seminars here.
- Additional information and resources can be found via the NHS.