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The Microscope Ball 2026 raises record amount
October 9, 2026
Read The Microscope Ball 2026 raises record amount
Call for MLAs to support newborn screening for SMA in Northern Ireland
October 9, 2026
Read Call for MLAs to support newborn screening for SMA in Northern Ireland
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Apitegromab, a treatment for SMA, will not be submitted for approval in the UK
October 7, 2026
Read Apitegromab, a treatment for SMA, will not be submitted for approval in the UK
Thousands complete Bidwells Cambridge 10k raising £175k
October 5, 2026
Read Thousands complete Bidwells Cambridge 10k raising £175k
Nominations open for our Stronger Together Awards 2027
October 1, 2026
Read Nominations open for our Stronger Together Awards 2027
SMA screening starts in England, but babies in Wales and Northern Ireland left behind
October 1, 2026
Read SMA screening starts in England, but babies in Wales and Northern Ireland left behind
SMA newborn screening update: Our evidence to the Northern Ireland Assembly Health Committee
September 11, 2026
Read SMA newborn screening update: Our evidence to the Northern Ireland Assembly Health Committee
Scotland expands spinal muscular atrophy treatment access to babies diagnosed before symptoms start
September 7, 2026
Read Scotland expands spinal muscular atrophy treatment access to babies diagnosed before symptoms start
New TK2d treatment available through UK early access scheme
September 2, 2026
Read New TK2d treatment available through UK early access scheme
Major £1.5m funding boost into muscle wasting conditions
September 2, 2026
Read Major £1.5m funding boost into muscle wasting conditions
Funding new research to understand the scale of neuromuscular conditions
August 18, 2026
Read Funding new research to understand the scale of neuromuscular conditions
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Myasthenia gravis treatment approved for NHS use in Scotland
August 10, 2026
Read Myasthenia gravis treatment approved for NHS use in Scotland

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