Understanding anxiety in Duchenne muscular dystrophy

We would like to invite you to take part in a study about anxiety in Duchenne muscular dystrophy. The study aims to get a better understanding of how to improve support for people living with Duchenne.

Everybody feels worried or anxious from time to time, but sometimes individuals and families living with Duchenne can have these feelings more often than others. Researchers at University College London (UCL) are holding focus groups to explore the experiences of people living with Duchenne, and how feelings of worry or anxiety might affect them. The researchers will also assess whether current methods for measuring anxiety are accurate in people with Duchenne.

The study will be held at UCL and is recruiting individuals with Duchenne (7-18 years old) and parents of children with Duchenne. To participate, you will need to be able to travel to UCL to take part in a confidential group session (1-2 hours long), which will consist of a number of focussed activities and discussions. Group sessions will be separate for parents and children.

Travel expenses will be reimbursed and all participants will receive a voucher as a thank you.

If you would like further information or are interested in this study please contact Dr Kate Maresh (k.matesh@ucl.ac.uk) or Rachel Trimmer (rachel.trimmer.16@ucl.ac.uk) or call 020 7905 2151.


Further Information


Learn about our mental health matters programme

Read the latest Duchenne news