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Our first work experience participant is about to join Moving Up, to help work on how we can best…
Your story
Marion Bloomfield and her group have knitted over 70 hearts in the last ten months for COVID…
Blog
Update: 22 January 2021
Since this blog was written, a second COVID-19 vaccine has now been given…
Blog
In my last blog it was lockdown 2.0, and now we find ourselves in the midst of a third.
In the…
News
We are launching this survey to provide an opportunity for you to share your experiences of life…
Your story
Undaunted by a diagnosis three years ago, for a very rare muscle-wasting condition, 66-year old…
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Engagement and priorities
Engagement on the content of the framework included the National…
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In December 2020 AMO- Pharma announced the initiation of the Phase 2/3 clinical trial, REACH-CDM.…
Your story
Ella Dixon was diagnosed as a manifesting carrier of Duchenne Muscular Dystrophy 11 years ago and…
Your story
Kerry, a child-minder, described the shock when following over a year’s tests and delays the family…