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The campaign, Walk with Carmela, is fronted by six-year-old Carmela Chillery-Watson, who has LMNA-…
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AveXis, which developed the treatment, announced the news on its website. You can read its press…
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On the day which would have been a grand affair in the Long Room at Lord’s, we’re holding our…
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NICE, NHS England and NHS Improvement have taken advice from clinical experts and consulted with…
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On 6th May, SMA UK, TreatSMA and MDUK, sent this joint letter to the NICE Programme Director –…
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We have not taken this decision lightly as we look to protect the research we are invested in as…
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NICE, NHS England and NHS Improvement have reviewed the potential impact of COVID-19 on the…
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Alexander made a huge, life-long contribution to the fight to beat muscular dystrophy and related…
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A six-year-old Devizes girl with a rare muscle-wasting condition is planning to walk 26 laps of her…
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You can read the statement in full here.
The statement sets out considerations for patients (and/…