Advanced filters
Blog
Every baby in the UK is offered some screening tests in their first six to eight weeks. As part of…
Blog
We’re looking for parents of adults with Duchenne to be part of the focus group, which will explore…
News
People often think of a brand as a name and logo. But it's about who we are, what we do and why we…
Blog
Skeletal muscles are the muscles we use to move our bodies. They are made up of long fibres,…
Your story
I knew I was gay since I was around fourteen, but I spent nearly twenty years hiding in plain sight…
Your story
We call having FSHD our superpower, and the positive thing about having the condition is certainly…
News
We appreciate that watching this drama may lead to challenging emotions or raise questions or…
News
Pompe disease is a chronic, rare, genetic, progressive metabolic disease which results in severe…
Blog
As well as awareness, the week is also designed to help those who don’t necessarily identify as a…
Blog
I first got into volunteering while doing my degree in public relations. It was that classic case…