News, blogs and stories

Read the latest news, browse other people's stories and find blogs about experiences you relate to. You can also read our publications like Target MD, and find our most recent press releases.

Advanced filters

Your story
I first came across MDUK in 1992, when my son Christopher was diagnosed with Duchenne muscular…
Your story
It was another normal day when it happened; I was trying to run a staff meeting when suddenly I…
News
PREFER was a six-year project that aimed to outline the importance of using patient preferences in…
Blog
While some people living with muscle-wasting conditions tell us of the social isolation they feel,…
Your story
Lilian took on the challenge of a lifetime for her son, George.  She has done plenty of…
Publication
In this edition, we have lots of exciting updates about Changing Places, our Muscle Matters groups…
News
The clinic will be led by Dr James Lilleker and Philip Kelly. This is a wonderful opportunity for…
Blog
Having a muscle-wasting condition often means adjusting to a new and unexpected reality, and many…
News
Here at MDUK, we are celebrating the success of Oxford Town and Gown 2022, which took place this…
Blog
I have been gaming since I was 10-years-old when congenital myasthenic syndrome, a rare type of…