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Dear fellow MDUK members,
We are in Pompeii!
I have been here before many years ago, but I had no…
News
NICE widens scope of its appraisal of Zolgensma
This will now be in line with the European…
Blog
I could see figures for people contracting the virus increasing steeply and so working in Central…
News
In our first condition-specific seminar, which marked SMA Awareness Month, Professor Laurent…
Blog
Emerging from the garden gate, masked up with the Mr and our two girls, that sunny day of 1 August…
Your story
The 37-year-old from Brackley is still planning on racking up the miles for the charity, which was…
News
There are currently few clinical trials being carried out for the condition, which affects about 2,…
Your story
"I was diagnosed with FSHD when I was 17 and studying for my A-Levels. It didn’t affect me that…
News
On Monday 17 August, Roche announced that the European Medicines Agency (EMA) has validated the…
Your story
Chloe Smith, whose three-year-old son, Jenson, has a muscle-wasting condition, knows how difficult…