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This free event, at the T3 Conference Centre, Lisburn, provided practical information and support…
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Living with CMT has limited areas of my life. Some of the everyday things that people without my…
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The National Institute for Health and Care Excellence’s (NICE) have published draft guidance ‒…
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On Sunday 15 October Angela, with her husband Brian, will officially start Bidwells Cambridge Town…
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On Friday, 22 September, PTC Therapeutics, the company that manufactures Translarna, issued a…
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Translarna currently has a conditional marketing approval (authorisation) from the EMA, given in…
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I decided to get involved with fundraising for Muscular Dystrophy UK (MDUK) as my dad, Edward,…
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“Today has definitely been one for the memory box.”
Louisa, whose son, Archie, lives with…
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Running for Andrew
Graham recently decided to get back into running after a long break and last…
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Our new research grants cover a variety of different muscle-wasting conditions, such as ADSSL1…