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Read the latest news, browse other people's stories and find blogs about experiences you relate to. You can also read our publications like Target MD, and find our most recent press releases.

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Image of Dymphna Kennedy with quote "Having access to resources like this handbook is a big key to helping myself and other members of my family."
MDUK launches Fatigue Management handbook to support people living with neuromuscular conditions
Fatigue is a very common symptom that so many people with neuromuscular conditions experience.…
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Physios at MDUK Conference
The assessment results of SMA standards of care in the UK
Earlier this year, a team led by researchers at Newcastle University conducted a study to shed…
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Image of Hilary Irwin with quote 'I have found it very isolating at times living with fatigue and the document reinforces the fact that you are not the only one dealing with it.'
Hilary Irwin who lives with mitochondrial disease says new fatigue management resource is ‘vital for increasing awareness’
Many people living with neuromuscular conditions suffer greatly from fatigue. Lack of understanding…
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Benjamin James, a patient representative for the Adult NorthStar Network, and Prof Ros Quinlivin, the chair (of the Network)
New videos to help adults with Duchenne muscular dystrophy access the standard of care they need
In association with the Adult NorthStar Network, MDUK has funded and produced a new collection of…
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Blog
Abby & Gillian in MDUK running jersey
Unstoppable mum and daughter team tackle half marathon every month this year for their friend with Duchenne
Abby, 30, and her mum Gillian, 51, are taking on an incredible fundraising challenge for their…
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Physios at MDUK Conference
Prevalence of muscle-wasting conditions needs to be reflected in the number of healthcare staff
In February, we revealed that there are now 110,000 people living with muscle-wasting conditions in…
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Blog
Carmela and Lucy with bikes and helmets
Wonder Girl Carmela is back with an epic new fundraising challenge – join her!
On Monday 1 August, Carmela’s family and 11 friends will set out on a one-day 66-mile cycle ride on…
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Image of researcher using pipette with overlay of words 'research news'
Duchenne drug Givinostat shows success in Phase 3 clinical trial
On Saturday, 25 June, Italfarmaco Group announced positive data from the completed placebo-…
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Suzanne Croft on pavement next to bollards with knitted Queen's Guards on top
Calls for urgent action after woman living with limb girdle muscular dystrophy is left stranded on plane
It is essential disabled people get the accessibility support they need to live life as fully as…
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Blog
John & Dani sat outside
Dani Poulter, MDUK’s Digital Marketing Assistant, takes on grueling challenge for brother living with Duchenne
MDUK’s very own Dani Poulter will be taking on the tough Pedal, Paddle, Peak challenge to raise £2,…
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