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Having a muscle-wasting condition often means adjusting to a new and unexpected reality, and many…
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I have been gaming since I was 10-years-old when congenital myasthenic syndrome, a rare type of…
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This weekend, on Sunday 8 May, up to 5,000 runners will be racing in the streets of Oxford for the…
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With growing interest from several pharmaceutical companies around clinical trials for FSHD, FSHD…
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On 29 March, Genetic Alliance UK hosted a roundtable meeting at Great Ormond Street Hospital…
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MDUK welcomed over 80 neuromuscular physiotherapists from across the country, to come together to…
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Inspired by their favourite superheroes from the Avengers, Oscar and Seb Spink will be climbing the…
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SMA newborn screening currently takes place in many European countries but thus far hasn't been…
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Two weeks ago, we launched our Northern Ireland Shining a Light report, the final in our series…
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Anjali Solanki, 30, lives with congenital muscular dystrophy. She tells us how it affects her body…